WELCOME TO
Mitchell's Moments
Living with a Urea Cycle Disorder


 

 The Magyar Family's Mission Statement:

In April of 2008, our son, Mitchell, was diagnosed with a rare Urea Cycle Disorder. Since his diagnosis, we have made it our mission to:

Raise awareness regarding the importance of newborn screening - in an effort to save children's lives - who otherwise might go undiagnosed or undetected.
E
ducate families regarding urea cycle disorders, so they are able to recognize the signs that their child might be suffering from such a disorder.
R
aise funds for the National Urea Cycle Disorders Foundation (NUCDF). The NUCDF is a non-profit – and the only - organization dedicated to the identification, treatment and cure of urea cycle disorders.  Individuals suffering from urea cycle disorders face many challenges in their lives and desperately need the support and research that is provided by the Foundation.
R
aise awareness regarding the importance of becoming an organ donor.  Individuals with urea cycle disorders often require a liver transplant.  Please help save a life and become an organ donor.

We pray for a day when no child will ever have to suffer from a urea cycle disorder, as Mitchell does every day!

As Margaret Mead said,
"Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has." 

Together, we can make a difference in the world of urea cycle disorders.

Our sincerest gratitude to everyone for their support, prayers and positive thoughts as we have struggled to understand Mitch's rare disorder and have started, and will continue, on a journey down a road that is always changing and unknown to us.

The Magyar Family

 

...Please enter into the world of

Urea Cycle Disorders and join us

in our quest to find a cure...


Learn about Urea Cycle Disorders and how you can help:

The National Urea
Cycle Disorders
Foundation

  What is a urea
cycle disorder?
  Make a donation to
the NUCDF in honor
of Mitchell Magyar
  Read stories about lives affected by and lost to urea cycle disorders


The Magyar Family:

View slide shows of
"Moments with Mitchell"

  Contact the
Magyar Family
  Read Mitchell's
story and journal


 Newborn Screening:

Educate yourself about
newborn screening
in your state

  Newborn Screening
 Stories


Fundraising Opportunities:

Upcoming
Fundraisers

  Purchase a custom
designed "Mitch Bag"
from Bagolitas
  Ongoing
Fundraisers